stonedsour's Diaryland Diary ----------------------------------------------------------------------------------------- Aidan Hey folks. I know it's been months since I've posted anything. There's a lot of bad news...even more really shitty news. but first... I had my second son August third...at four in the morning...four eleven to be exact... He was transfered to a different (much better) hospital the same afternoon. We named him Aidan... Unfortunately...he has a cleft pallet (a small hole in the top of his mouth...like a hairlip[cleft lip]but on the roof of his mouth)and he also has a small chin...which makes it hard for him to breath. His tongue falls back like an old man's and it obstructs his airway...so he has to stay mostly on his side or stomach to get good oxygen but he has been progressing really well and is able to breath good while lying on his back. He has to eat through a tube...and probably will have to do so for a while until he gets strong enough to breath good while he's eating. The thing with the cleft pallet and the small chin is mostly the feeding and breathing. Like, when we swallow we stop breathing for a split second...when Aidan swallows he has to keep swallowing and swallowing...(because of the cleft)causing him to lose oxygen...When he's strong enough he'll be able to eat with a special nipple made for babies with clefts and when he's a year old or so they'll be able to operate and fix the cleft pallet.He'll grow out of the small chin and jaw.... The really shitty news... He'll probably be blind...or have little/very poor vision caused by an underdeveloped cornea.It'll only grow about 10% since most corneas are already fully formed and grown by birth. More really shitty news... He was born without the corpus closum...basically the link/piece of the brain right in the middle that connects the left and right brains. No one knows what kind of an effect it'll have..what kinds of problems it will cause...but so far...Aidan is living like a normal baby...The doctors have to run tests and more tests...and the waiting is the hardest part...no..I take that back..not being able to take him home right now or do anything is the hardest part...but..we'll probably be able to take him home withing a week or two... other news...won some awards for my writing...had several poems published..Ryan my other son is doing great...this is just...extremely hard..I just don't understand...and he's so little..he doesn't deserve this... 11:14 a.m. - 2004-08-10 ----------------------------------------------------------------------------------------- |
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